My HHT Tracker 1.0

The My HHT Tracker app serves as a valuable resource for individuals managing the genetic condition Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler Weber Rendu Syndrome. Developed by Cure HHT, this application enables users to monitor their health status daily, organize medical tests and results, share information with their healthcare providers, and keep track of their HHT condition.

Through the My HHT Tracker, users can swiftly evaluate the progression of crucial indicators such as blood counts, iron levels, nosebleed scores, oxygen levels, and heart markers over time. Additionally, individuals can evaluate the impact of interventions and easily set up reminders for upcoming tests.

Upon entering essential HHT-related data into the app, users have the option to receive a comprehensive email summary that can be shared with their medical team. Furthermore, the app offers general recommendations for addressing a wide array of HHT concerns in its FAQ and Resources section.

It is important to note that My HHT Tracker ensures the privacy of health information by not disclosing any data externally unless explicitly chosen by the user during the sharing process.

If you have any feedback about the My HHT Tracker app or require assistance, do not hesitate to contact Cure HHT. You can reach out via email at [email protected] or access additional resources on our website at http://www.curehht.org/.